More flying with PA and airborne reactions

I’ve flown airlines long ago where they handed out little bags of peanuts and I I’ve never gone into anaphylaxis.  I’m grateful my allergy is not that severe.  However, when United Airlines declared themselves to be peanut free about 20 years age they became my preferred airline.  Why? It’s because I am airborne sensitive to peanut protein or peanut ‘dust’ and any allergic reaction makes you feel like crap in one way or another and causes bodily fatigue that can last many hours afterwards.

As I’ve gotten older I’ve become more aware of the how my body responds to allergens and also to the decongestants or anti-histamines that counteract them. It seems like every anti-histamine has SOME negative side effect; some of them immediate, some have effects that show up after days of use and some have potential long lasting implications. For this reason I’m looking into Immunotherapy for my seasonal allergies.

Delta to Detroit

But in addition I have hope to change my life and free myself from the LTFA prison, so one of the things I’m doing is flying on Delta Airlines. Delta serves peanuts on some of their flights but has become very responsive to peanut allergy sufferers. If you inform them of your allergy they won’t serve peanuts on your flight. Normally I would never fly Delta, but the majority of my family lives in the Detroit area and Delta has a hub there, so they are the only airline with direct flights from California. A direct flight saves me 90 minutes and the hassle of a connecting flight every time I visit. Not to mention I can fly a red-eye and get uninterrupted sleep the whole way. What’s not to like about that? But in the end I can’t go on being afraid to fly. I need to find a way to not let this get in the way of living.

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The inconvenience of a reaction: reality

I explained earlier my reasoning for wanting to avoid an allergic reaction by something other than ‘I could die’.
What follows just showed up yesterday on Facebook and I’ve redacted the identities. From the original question to the last result was about 8 hours. I have never seen a post before where there is not some dissention. This is the only post that I’ve ever seen where the response is UNANIMOUS:

Original Post:

I can sleep all day after an reaction. Is this normal?

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Flying with PA: Customer service hell

My father owned his own contracting business in Detroit and insisted all his kids go to college and get a ‘white-collar’ job. I ended up with an engineering degree and went to Silicon Valley in the high tech field. Worked for a large multi-national company, but didn’t realize at the time in order for my career to progress required business travel. Some times more than others, both domestic and international.  YIKES!! What did I get myself into?

When I started flying the attendants pushed peanuts out with every drink.  Slowly there was conversion to non-peanut snacks. It was a nuisance, but not horrible, and my initial travels were domestic flights.

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Becoming your own advocate

I am an introvert. If you want to know what that is you can get this book or watch this video by the author.

Dealing with LTFA has been hard medically and emotionally, but the hardest challenge of all was developing the confidence to be my own advocate. It would be too complicated or too personal to go through the how I managed to get here, frankly I’m grateful and blessed to be alive. So instead I’m instead going to tell you the story of someone who truly inspires me. Someone who in 29 months has dealt with more challenges than I dealt with in 29 years. There is one catch however, the story I’m going to tell you is about one of the world biggest extroverts. His story is already public, his name is Sean Maloney and I’m honored to call him my friend. Continue reading

I have this jigsaw puzzle inside my head

Every morning I wake up with a new found realization.  This has been going on for years; it’s about what’s inside my head but until now I haven’t written about it.  This morning it was several little epiphanies. (and a few big ones).  Here are the little ones:

  1. Others have described it as the little boxes theory, it’s not boxes, its a jigsaw puzzle
  2. I wasn’t anxious about losing my job, I was anxious about the thought of being forced out of the safe bubble that I had taken 11 years to build at my previous employer.  Ironically, it became a self fulfilling prophecy. The anxiety consumed me, I couldn’t do my job, they fired me because I wasn’t doing my job. I would have fired me too. I don’t blame them (anymore), and I’ve given up the thought of going back, because I no longer need to.
  3. blogging is like putting together a jigsaw puzzle

That’s all the time I have today…

© MICHAEL G SPORER AND LIVING WITH PEANUT ANAPHYLAXIS:ADULT VERSION, 2015

My safe bubble, my prison

I am a prisoner to this allergy. I live in a bubble where avoidance is possible and safe. I can’t leave my bubble without feeling unsafe. I spend too much time and mental energy on avoidance when I’m outside the bubble and it is completely exhausting. If I’m lucky I bring one of my angels with me to keep me safe and sane.

If you have a kid with ANA you absolutely need to empower them to advocate for their health and safety so they can avoid, but you should also try to lower their risk. How to do that? I don’t know, but for me, I’ve been waiting 49 long years for OIT.

© MICHAEL G SPORER AND LIVING WITH PEANUT ANAPHYLAXIS:ADULT VERSION, 2015