I’ve been challenged on the idea of whether or not Mylan is a monopoly, if so, what caused it, and how many competing solutions could exist in this relatively small market. I claim they are not, because alternatives exist. Other say they are a monopoly because there is not a generic EpiPen(r).
I’ve been told Europe has thriving competition in the autoinjector market and supports EIGHT different solutions. I’ll get back to this point later, but I did uncover two important developments in Europe that we aren’t seeing here in the US.
- The newer models are being offered in an additional dose of 0.5 in addition to 0.3 and 0.15. The new dose supports a higher body weight patient.
- There have been research results on needle length and one of the newer injectors addresses these new findings.
I have no idea about the state of regulation over there, but here are the claimed EIGHT other autoinjectors I found on the internet:
I’ve flown airlines long ago where they handed out little bags of peanuts and I I’ve never gone into anaphylaxis. I’m grateful my allergy is not that severe. However, when United Airlines declared themselves to be peanut free about 20 years age they became my preferred airline. Why? It’s because I am airborne sensitive to peanut protein or peanut ‘dust’ and any allergic reaction makes you feel like crap in one way or another and causes bodily fatigue that can last many hours afterwards.
As I’ve gotten older I’ve become more aware of the how my body responds to allergens and also to the decongestants or anti-histamines that counteract them. It seems like every anti-histamine has SOME negative side effect; some of them immediate, some have effects that show up after days of use and some have potential long lasting implications. For this reason I’m looking into Immunotherapy for my seasonal allergies.
Delta to Detroit
But in addition I have hope to change my life and free myself from the LTFA prison, so one of the things I’m doing is flying on Delta Airlines. Delta serves peanuts on some of their flights but has become very responsive to peanut allergy sufferers. If you inform them of your allergy they won’t serve peanuts on your flight. Normally I would never fly Delta, but the majority of my family lives in the Detroit area and Delta has a hub there, so they are the only airline with direct flights from California. A direct flight saves me 90 minutes and the hassle of a connecting flight every time I visit. Not to mention I can fly a red-eye and get uninterrupted sleep the whole way. What’s not to like about that? But in the end I can’t go on being afraid to fly. I need to find a way to not let this get in the way of living.
A few weeks ago I was asked “what do you plan to do for Food Allergy Awareness (FAA) week?” My response was “nothing”. FAA Week has been going on for a couple years now, spearheaded by FARE.ORG. This year the week started May 10th and ends next weekend with the annual FARE.ORG conference.
I subscribe to a blog, and read a post about how he convinced his wife to take her blog and write a book. Well, the next thing you know, I decided to try to do the same. So here it is:
Living with Peanut Anaphylaxis or other Life Threatening Food Allergies [Kindle Edition]
So, you just heard the dreaded news; your child has a Life Threatening Food Allergy (LTFA) and you are wondering just where to begin.
Prepare to be inundated with information and well intentioned advice from every angle. At any point in time parents are faced with too many choices, too many options. In the end there is only one path taken, one road traveled. This is a one way road and if you ever have a moment of self doubt there is only one acceptable answer:
“I made the best decision that I could with the information available to me at the time.”
Put this in your toolbox and reach for it often. Decide that you want to learn to make better decisions in the future and stop worrying about what almost happened. LTFA is a profound, terrifying experience, and not just for the parents. Mistakes will be made, accidents happen. Learn, live, keep moving forward. There is no alternative.
I explained earlier my reasoning for wanting to avoid an allergic reaction by something other than ‘I could die’.
What follows just showed up yesterday on Facebook and I’ve redacted the identities. From the original question to the last result was about 8 hours. I have never seen a post before where there is not some dissention. This is the only post that I’ve ever seen where the response is UNANIMOUS:
I can sleep all day after an reaction. Is this normal?
Most people* are good and they want to help. They want to keep you safe. You need to help them help you. You don’t need to ask them lots of questions, but rather ask them the right questions. There is, however, one question you should never ask anyone, except your angels. That question is “Is this safe?” Let me tell you why.
My father owned his own contracting business in Detroit and insisted all his kids go to college and get a ‘white-collar’ job. I ended up with an engineering degree and went to Silicon Valley in the high tech field. Worked for a large multi-national company, but didn’t realize at the time in order for my career to progress required business travel. Some times more than others, both domestic and international. YIKES!! What did I get myself into?
When I started flying the attendants pushed peanuts out with every drink. Slowly there was conversion to non-peanut snacks. It was a nuisance, but not horrible, and my initial travels were domestic flights.
I think it’s a great idea. The expiration of a medication depends significantly on the temperature, in addition to time elapsed. This will help identify if it’s gone bad* before expiration and if used properly will extend the life expectancy of meds stored at a more benign temperature. It also warns you if your cell phone and your meds become separated.
The cost of this device is paid for if the ‘expiration’ of the epi is extended by just a few months. I started carrying epi in 1986, and the expiration time back then was definitely longer than 1 year. I’m sure they brought it down to reduce their liability in a lawsuit, but also … to get everyone to throw away perfectly good meds and buy new. Here’s the journal article.
(*-Gone bad caused by leaving a new epi in a hot car. At the time the liquid was clear, but turned brown months later and well within the expiration date.)
Veta™ is a Smart case for remote monitoring of your child’s Epi-pen.
Veta™ connects loved ones and caregivers to people living with life-threatening allergies, resulting in increased freedom, security and confidence for everyone involved. The Veta system includes:
- Veta smart case, which holds your EpiPen®
- Veta app, running on iPhone®, iPad®, iPod touch® and Android™ mobile devices, connecting to your support networks through a cloud-based infrastructure.
Recommendations on this page are merely recent observations of innovative products intended to keep us safer. No compensation was received, This is just what I stumbled upon recently.