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At this point in my life I’ve decided there is less risk of me dying by going through OIT desensitization, even if it is still experimental, rather than continue peanut avoidance. All content is for informational purposes only.
I started blogging in part to share my experience with the parents, but it’s sort of evolved to be more directed at the kids themselves. I’ve come to realize there are kids out there today with allergies WAY worse than mine. In comparison I have it easy. And I have three beautiful children with no food allergies at all, go figure. So I really have little in common with the parents. As long as I have something to write, I’ll write.
I’m trying to be honest about it, not just the medical aspect, but the quality of life, the mental health issues, the PTSD from ANA and the anxiety with the potential to develop high blood pressure, which can be just as deadly. You need to control this rather than letting it control you, I wish I had figured all this out a long time ago, but what changed it for me was the idea that the could be a treatment. Until 6 months ago I was told it was hopeless. Now I have hope that my life can change.
Parents: Your kid is the one with the allergy, not you, so EMPOWERING your children to control and speak up for their health and safety is actually MORE important than anything else, including not forcing them into OIT if they are not ready.
I’ve gotten feedback from people that DON’T have to deal with LTFA that some of what I write about seems too frightening to be shared with parents who are new to dealing with kids with allergies. I’d rather they read about me, the boy that lived, than the alternative. My story will hopefully have a happy ending someday. Of course, my LTFA story pales in comparison to these brave kids and parents that are dealing with this in today’s environment. Let’s get a treatment, let’s find a cure, but most of all let’s figure out WTF is causing this epidemic!
Blog vs. Facebook
Hey, Facebook Generation!
Blogging has been around about 10 years LONGER than facebook. But there is a big difference and it’s all about MARKETING. Facebook is PUSH marketing, meaning you join facebook and I can contact you unless you block me. Blogging is about PULL marketing, meaning I have something interesting enough that you keep coming back for more. Who is the king of PULL marketing? Well, Google, of course, but advertisers don’t care, they like both. They want your eyeballs and YOU are the product, (that’s what FREE means). You know where you can get all the free food that you want? A feedlot.
So what does this mean?
1. My reasons for starting this blog are simple and if you keep reading you will find out why
2. Once my needs are fulfilled I will lose interest, unless I can be of service to YOU
3. If you like my blog I need you to SUBSCRIBE, so I know that you are out there
4. You can have my blog emailed to you, that’s fine, but I won’t know that you are reading it, so please read my blog on my blog site, so I know that you are there. When you get the email, just click the link to bring you to the website.
5. Read the blog from the website. Why? Because someone is tracking how often you visit and how long you stay on the page. (scary). This is a gauge for what you want and how well I’m writing.
6. If I ever achieve critical mass/interest then I might consider selling advertising. Frankly, this is not the reason why the blog exists. Regardless, if no one reads it, I’ll eventually stop.
Does it feel like I am asking too much of you? If so, do you use facebook or google, (or amazon, or …)? Then, what’s the difference?
This could turn out to be just another whim, or it might turn into something really meaningful. Either way is fine. But one of my goals is to help others. and if this blog helps you then please help me back.
The same applies to all the other blogs you read …