The inconvenience of a reaction: reality

I explained earlier my reasoning for wanting to avoid an allergic reaction by something other than ‘I could die’.
What follows just showed up yesterday on Facebook and I’ve redacted the identities. From the original question to the last result was about 8 hours. I have never seen a post before where there is not some dissention. This is the only post that I’ve ever seen where the response is UNANIMOUS:

Original Post:

I can sleep all day after an reaction. Is this normal?

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Flying with PA: Customer service hell

My father owned his own contracting business in Detroit and insisted all his kids go to college and get a ‘white-collar’ job. I ended up with an engineering degree and went to Silicon Valley in the high tech field. Worked for a large multi-national company, but didn’t realize at the time in order for my career to progress required business travel. Some times more than others, both domestic and international.  YIKES!! What did I get myself into?

When I started flying the attendants pushed peanuts out with every drink.  Slowly there was conversion to non-peanut snacks. It was a nuisance, but not horrible, and my initial travels were domestic flights.

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Epinephrine tracker – Indigogo project – I just funded this, you can too!

I think it’s a great idea. The expiration of a medication depends significantly on the temperature, in addition to time elapsed. This will help identify if it’s gone bad* before expiration and if used properly will extend the life expectancy of meds stored at a more benign temperature. It also warns you if your cell phone and your meds become separated.

The cost of this device is paid for if the ‘expiration’ of the epi is extended by just a few months. I started carrying epi in 1986, and the expiration time back then was definitely longer than 1 year. I’m sure they brought it down to reduce their liability in a lawsuit, but also … to get everyone to throw away perfectly good meds and buy new.  Here’s the journal article.

(*-Gone bad caused by leaving a new epi in a hot car. At the time the liquid was clear, but turned brown months later and well within the expiration date.)

Veta™ is a Smart case for remote monitoring of your child’s Epi-pen.

Veta™ connects loved ones and caregivers to people living with life-threatening allergies, resulting in increased freedom, security and confidence for everyone involved. The Veta system includes:

  • Veta smart case, which holds your EpiPen®
  • Veta app, running on iPhone®, iPad®, iPod touch® and Android™ mobile devices, connecting to your support networks through a cloud-based infrastructure.

Recommendations on this page are merely recent observations of innovative products intended to keep us safer. No compensation was received, This is just what I stumbled upon recently.

© MICHAEL G SPORER AND LIVING WITH PEANUT ANAPHYLAXIS:ADULT VERSION, 2015

Dining out: Step 1

I was invited to lunch by a fellow who is a vegetarian. It was his turn to choose the restaurant, a place I had never eaten before.. It took 3 email exchanges to get to the answer I was looking for.  This information could have easily been on their website along with their menu, they actually have allergy info on their webpage, but nothing specific to peanut. This is an email exchange I had with the restaurant:

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Becoming your own advocate

I am an introvert. If you want to know what that is you can get this book or watch this video by the author.

Dealing with LTFA has been hard medically and emotionally, but the hardest challenge of all was developing the confidence to be my own advocate. It would be too complicated or too personal to go through the how I managed to get here, frankly I’m grateful and blessed to be alive. So instead I’m instead going to tell you the story of someone who truly inspires me. Someone who in 29 months has dealt with more challenges than I dealt with in 29 years. There is one catch however, the story I’m going to tell you is about one of the world biggest extroverts. His story is already public, his name is Sean Maloney and I’m honored to call him my friend. Continue reading